The Lambert-Eaton LEMS Family Association was incorporated in the State of Texas, June 14, 2022. The founders, all LEMS patients, and patient advocates are Julianna Kustelski of Denver Colorado, Price Wooldridge of Fort Worth, Texas, and Kristina Patafio of Staten Island, New York. In 2024 Lori Dunham of Florida joined the board, and in 2025 Tracy Sharp of Kentucky joined the board. Our volunteers serving all LEMS patients include Kristin Williams, Kristen Russell, Desiree Taliancich, and Peter Calore.