The Lambert-Eaton LEMS Family Association was incorporated in the State of Texas, June 14, 2022. The founders, all LEMS patients, and patient advocates are Julianna Kustelski of Denver Colorado, Price Wooldridge of Fort Worth, Texas, and Kristina Patafio of Staten Island, New York. Joining the founders are Desiree Taliancich, a Nurse Practitioner, and Kristin Williams Snow, a Registered Nurse.