Please meet our new Executive Director, Madeline Miller.

Madeline Miller is an accomplished nonprofit leader with over a decade of experience driving organizational growth, advancing community engagement, and fostering strategic partnerships.  She has dedicated her career to empowering rare disease communities and amplifying the voices of patients and families.

 Madeline is committed to advancing the mission of The Lambert-Eaton LEMS Family Association and improving the lives of individuals and families affected by all rare diseases.

We want to hear from you!

We Want to Hear from YOU—So We Can Better Support Your Journey

As part of our commitment to better serve our community, we’re gathering a bit more information about the amazing individuals who are part of our organization—you!

This quick survey (the first of two) is all about understanding who is currently in our network. The next survey will look at what resources and connections are needed most for our patient community. 

Your answers will help us create more meaningful resources, programs, and events that truly reflect your needs and interests.

It should only take a few minutes to complete.

Watch the March 30th LEMS Awareness Day Online Meeting!

Please welcome our newest board member, Tracy Sharp of Kentucky.

The LEMS Patient Registry is OPEN!